Abstract: Background: In recent years we are witnessing a welcome trend in which more children/persons with disabilities are living at home with their families and within their communities. This trend is related to various policy innovations as the UN Convention on the Rights of People with Disabilities that reflect a shift from the medical-institutional model to a human rights approach. We also witness the emergence of family centered approaches that perceive the family and not just the individual with the disability as a worthy target of policy planning, implementation and evaluation efforts. The current investigation aims to explore economic, psychological and social factors among households of families of children or adults with intellectual disabilities in Israel and to present policy recommendation. Methods: A national sample of 301 households was recruited through the education and employment settings of persons with intellectual disability. The main caregiver of the person with the disability (a parent) was interviewed. Measurements included the income and expense surveys; assets and debts questionnaire; the questionnaire on resources and stress; the social involvement questionnaire and Personal Wellbeing Index. Results: Findings indicate significant gaps in financial circumstances between households of families of children with intellectual disabilities and households of the general Israeli society. Households of families of children with intellectual disabilities report lower income and higher expenditures and loans than the general society. They experience difficulties in saving and coping with unexpected expenses. Caregivers (the parents) experience high stress, low social participation, low financial support from family, friend and non-governmental organizations and decreased well-being. They are highly dependent on social security allowances which constituted 40% of the household's income. Conclusions: Households' dependency on social security allowances may seem contradictory to the encouragement of persons with intellectual disabilities to favor independent living in light of the human rights approach to disability. New policy should aim at reducing caregivers' stress and enhance their social participation and support, with special emphasis on families of lower socio-economic status. Finally, there is a need to continue monitoring the economic and psycho-social needs of households of families of children with intellectual disabilities and other developmental disabilities.
Abstract: This paper analyzes the political and economic issues
that people with disabilities face related to globalization; how people
with disabilities have been adapting globalization and surviving under
worldwide competition system. It explains that economic
globalization exacerbates inequality and deprivation of people with
disabilities. The rising tide of neo-liberal welfare policies emphasized
efficiency, downsized social expenditure for people with disabilities,
excluded people with disabilities against labor market, and shifted
them from welfare system to nothing. However, there have been
people with disabilities' political responses to globalization, which are
characterized by a global network of people with disabilities as well as
participation to global governance. Their resistance can be seen as an
attempt to tackle the problems that economic globalization has
produced. It is necessary paradigm shift of disability policy from
dependency represented by disability benefits to independency
represented by labor market policies for people with disabilities.